delight: (a dragonfly for mom)
primum non nocere sans documentum ([personal profile] delight) wrote2018-08-13 04:33 pm

(no subject)

This was going to be the amazing post about Health Care Corporate Espionage and Passive Takeovers but it's not because I didn't end up having time to write that. That will be access-locked because we can't even talk about it outside locked doors in our own building. Suffice to say that my higher-boss, my boss' direct report, refers to most people involved by names derived from Asimov's Robots series (the original whodunnit mystery ones) and Machineries of Empire. It is quite a story and is actually my life.

This isn't that post because again, today got busy, but.

My personal hero and all around amazing guy, Peter Staley, wrote something important, and I would like everyone who cares about public health even a little to give it a read:

Privilege and Profit Corrupt the PrEP Access Debate

I work (indirectly, but I'm on their contract) for SAMHSA; HRSA is our partner. My father was one of the few physician-members of TAG and can be seen in video clips of protests in How to Survive a Plague. People so often think this is over; that HIV/AIDS stigma and drug/cost battles are a thing of the past, and yes, PrEP's existence contributes to that mentality (ask me sometime about the 'PrEP generation') -- but it's definitely not over. "AIDS, Inc." is not over.

don't talk to me about Martin Shkreli though -- I mean, you can, but the drug he is famous for is not actually an AIDS medicine and that misconcepton makes me nuts

ETA: Further disclosure; I used to also work for the DOHMH STI clinic program described. I continue to be affiliated and refer people there.
yhlee: Fall-From-Grace from Planescape: Torment (PST FFG (art: maga))

[personal profile] yhlee 2018-08-13 09:16 pm (UTC)(link)
I read this; thank you for sharing.
syntheid: [Elementary] Watson drinking tea looking contemplative (Default)

[personal profile] syntheid 2018-08-13 09:54 pm (UTC)(link)
fyi, this post is public! I can't really read the article at the moment, but bookmarking for later.
jesse_the_k: Pill Headed Stick Person (pill head)

Looking forward to the report from the Robot front...

[personal profile] jesse_the_k 2018-08-15 11:54 pm (UTC)(link)
Wow, that is a great blog entry re PrEP and thank heavens that Peter Staley is still among us kicking ass and taking names.

Gilead’s patient and copay assistance programs

It seems these band-aid programs exist to mollify the patients who are pushy enough to find them, so they don't get pushy enough to demand sensible drug prices.